Monday, April 12, 2010

Improvement

We are excited to report that Granton's immune system is now showing signs of function according to his labs! Of course, we can see the physical signs, but now we have the proof, internally, too. His igm levels that have been in the 400-500 range are now at 600 (500 had been our goal). Also, Granton's antibodies are working. His body responded to the vaccines he received. These vaccines are the same that Kaylynn has received this past year and any normal child is encouraged to get. And, because of the lab results, Granton's doctor now wants to start weaning him off of his vivaglobin (immune boost medicine)! We will go back to his ivig as needed so that his body has a chance to recover on it's own and doesn't rely on the ivig support. So, instead of once every month, Granton will probably have his medicine spaced out with more time between each infusion depending on what he needs. This has all been great news for us to receive and on a special birthday...Kaylynn turns one today! Our family is celebrating here in Bolivar. We can't thank you enough for the prayer support you've given.

With lots of Love,

Jenni and gang

P.S.--The b-cell results have also come in. They are still at 16% donor cells...slow but sure.

Sunday, April 4, 2010

Easter Greetings







We did get some results back from the tests, however they were not about his donor B Cells. Right not we have to give Granton a shot if he gets a temperature because his immune system is not at full strength. His adrenal number needs to get to 18. Last time they tested it it was 12.7 and they were hoping it would be up where it should be. Well, it wasn't, but it is going in the right direction. The new number is 13.9 so we still have to watch him close and give him the shot when he needs it. The good news is it is going up. We will test him in about another eight or nine months and see if he has reached the magic number. We are still praying about b-Cells. As you can see, Granton, and his sister are not concerned with this at all. He loves to let his light shine. (He dances in a video that we can't get to load in a limited amount of time...too long). This being Easter, with all the added significance this day has on our family, I am reminded again of how we should do the same with just as much energy as he has. Thank you for your continued prayers. We wish you a very happy Easter.