Friday, June 10, 2011

Happy Transplant Birthday Granton



Today is Granton's transplant birthday!  I can't believe it was only three years ago we stood in his PICU room and all the Doctors and Nurses were quiet as I prayed for the new lifeblood Granton was receiving and that it would be used to save his body and make him healthy.  I have since been told that his chances were not much better than 0% at that time.  However, the little guy runs all over the place now and is walking proof of answered prayer.  As for his possible trip to Seattle, we still don't have any new news.  I think we are still waiting for some things on the Seattle end.  Of course we are still praying about this and we still have all the options I discussed in the last post.  However, for the other big news from the last post, baby # 3, we have big news.  Bayless baby # 3 is a boy!  We can't wait to see him in person.  Of course this makes SKIDs a bigger factor.  I can tell when people find out we are having another boy they have questions but most of the time are embarrassed to ask.  Don't be, we are totally fine and open to discussing this kind of thing.  Living in fear of what the future could be does not make the present any better.  It does not make the future better either for that matter. That is something God taught us with Granton and we have not forgot it.  Fear looks behind, worry looks around, but faith looks up.  We always want to look up.   Ok so here is the deal, the new baby has a 50% of having SKIDS.  I have to admit that every time I say this I remember the day one of the first SKID's survivors came to visit us in Children's Mercy.  He said he would like some kind of study done on this half chance of having it.  Because he said everyone in his family and extended family that had any chance of getting SKID's got SKID's.  Anyway, according to science, the chance is 50/50.  Keep in mind that if he has it, it would be different from Granton because then we did not know until it was about too late.  But this time we would be more prepared.  Here is how.  We will do a test at birth.  Babies get all their immune system from their mother's for the first few months if they are breast fed.  Obviously, he will be.  If the test is positive, we will look for a match and give him a transplant while he is still using Jenni's immune system through the milk.  Their is a 25% that he will match Kaylynn's cord blood which we have saved just for this kind of thing.  However, we have not had Kaylynn tested yet to see if she is a carrier.  This is something we will be talking to the Doctors about very soon.  I do not know for sure but I think her cord blood would not be useful if she is a carrier.  We will find all of this out on our next visit as it has become more important now that we just found out we are having another boy.  Of course, we ask for and appreciate all your prayers over Granton and the new baby.  The other big question about the new addition is much more fun.  What will we name him?  The first name is a done deal.  We have been saving it for a while and if Kaylynn was a boy we would have used the name on her, in fact, we probably would have used it on Granton had we thouht of it back then.  He will either be Carver Luke Bayless or Carver James Bayless.  As long as I can remember, George Washington Carver has been one of my biggest American heroes.  People, always say, oh yea, the guy who made peanut butter!  Peanut butter is not even the tip of the iceberg on what this man accomplished.  If I explained everything he did, you could still be reading this post tomorrow.  The thing that is most fascinating to me is not only his accomplishments but how he overcame so many things to do what he did.  He started as a poor, sick (actually he never was in good health) orphan slave with no education.  As a kid he taught himself to read by staring at a Bible and the rest is history.  Anyway, he was an amazing man and has always been one of my hero's.  We are still up in the air on the middle name.  I would like it to be a biblical name and we have always liked the sound of Carver Luke.  My brother Dustin's middle name is Luke and he is pulling for this name.  However, I have been reading in James lately and I commented to Jenni how much I like that book.  She said, maybe we should name the baby Carver James.  I really like this name also, it is a biblical name and one of my biggest personal hero's is the pastor I had growing up, Bro Jim.  His actual name is James Hardin.  One way or another, the kid is going to have a cool name. Wow, I wrote more than most attention span's can handle.  Thank you for still following the blog and all the prayers.  I hope you enjoyed the picture and videos.