As you can see the kids are doing very well. We are very busy in track season. In fact the sports reporter took this snapshot of kids playing in the sand pit at the end of the long jump runway after the event was over. Jenni and I were very appreciative of all the publicity Granton got. But it is nice that he made the front page of paper for just being a kid this time. We also have other big news; Bayless baby # 3 is on the way. Surprised? We were too! We love a good surprise and this one will be great. We are, of course praying for the babies health. SKID’s is a factor in our prayers and we would love for people to join us in prayer for our next little one. To the people who still read this blog – you will never know how much comfort we have received from your never ending prayers.
Ok, the update on Granton. If you have been reading and you remember, Granton’s T cells (the hardest fighting troops) are from this donor but a high percentage of his B cells are still his. We have been boosting his immune system by giving him IVIG. Last year we weaned him off of it. A few months later he got pneumonia and he and Jenni spent a little time back at Children’s Mercy. He has recovered and is great. But the question remains. Did he get sick because his B cells don’t work and we weaned him off the IVIG or did he get sick because kids just get sick? A few months ago we drew blood to make sure most of the B cells are still his. This week we got the results back. They are. So next question, do they work? We don’t know. In the past, people must be off IVIG, and risk getting sick, before a test could be given but now there is a new “experimental” test that can be given while he is on IVIG and he won’t have to risk being taken off of it to find out if his B cells can fight. This is good. However, the test is only being done in Seattle. I would have to take Granton there for a day or two visit twice this summer. Also, since it is an “experimental” test there is a very good chance insurance will not pay for it. Right now, I don’t know how I would pay for the plane tickets. We don’t even know what the test will cost, but I doubt it will be cheep. However, this is not a killer decision. We had to face too many of those three years ago. Here are our options:
1. Take him of IVIG and test the B cells a few months later
2. Give him the test in Seattle
3. Just continue to give him a “poke” or shot for a few hours every week by keeping him on IVIG
