Long time in-between.

Well more and more time seems to be in-between each post.  Actually, this is a good thing.  We are very blessed with the health of our kids.  I would describe our children and "normal" kids today.  Although, the boys do require a little extra attention and Kaylynn has not yet been tested to see if she is a carrier of SKIDs.  I pray she is not even though I know God will see her through motherhood if she is.


In my last post, I was excited and overwhelmed to report the Doctors told us Granton's B cells were working.  Well, it seems as if that was an error.  We did take him off his IVIG and over time his numbers became low enough that the Doctors decided to put him back on it.  I gave him an infusion last night.  He gets one a week and it is no big deal.  I am thankful Granton did not get sick while he was off IVIG.  In fact, Granton does not get sick much at all.  He has dealt with an ear infection a little but nothing big.  Actually, he earned a trophy at the end of the school year for attendance.  Granton did not miss one day of his 1st grade year due to being sick.  That is actually a bid deal for a little guy who's parents were told at best he would live on a ventilator the rest of his life.  I can't say enough how happy we are to have him in the health he is in.  Yesterday, I watched him practice his cartwheels and round-offs from his gymnastics class.  He also pulled the swing over to the slid and jumped of the slid while in the swing and ejected himself at the top of swing on the other end of the swing set.  By the way I made this swing set for them and it is about 15 feet tall so he was air born for quite a while.  A little scary for the parent but pretty cool at the same time!  Also, along the lines of athletics, Granton wrestled last winter.  Actually, he mainly goofed around in practice which drove his wrestling coach father crazy.  But he did get third place at the only tournament he went to.  Problem was there were only two other wrestlers.  I do have to admit he has really improved since then and I think he will win some matches next year if he decides to do it again.  He is just a normal boy.  He, and his buddy, got in trouble for shooting a window out of the tree house last week.  He drives me crazy sometimes but I am lucky because I welcome these "trials of parenting" since I can remember hoping and praying to have a boy like he is turning out to be.


Carver, AKA "Ham Bone" is also a wonderful blessing.  His immune system works just fine.  He is a type one diabetic, we think from the stress his little body went through with the transplant, however, that does not slow him down at all.  He is the most outgoing happy little boy I have ever seen.  We got him an insulin pump and it has been useful to keep his blood sugar a lot closer to where I should be. Sure, it is nerve racking sometimes but Jenni reminded me the other day that we CAN get the treatment or medicine they need.  We DO have answers for their problems and there are so many people who are still searching for what we have. 


I don't know who still reads this blog.  But I know some people do.  I hope to keep having long spans of time between each post because that means everything is okay.  If we are ever in trouble I will make a post, because I know there are some great prayer warriors who read this and I am happy to have people who have my back.  Thank you and thank the Lord for all he has done for us.