Say a Prayer for Carver

Granton and Kaylynn are busy playing on 6 Henson in their favorite hospital. Carver, unfortunately, is waiting in a room for a couple days to determine whether or not he has diabetes. His glucose level was checked three times so far, and the doctors here are treating him as a diabetic patient and giving him insulin. The last glucose test was as high as 455 from 466. Actually, Granton came in for a routine check-up and a yearly endocrine appointment. He is growing very well at an average of 3 inches a year. He's fine. I am thanking the Lord that we checked Carver's labs today as we weren't expecting anything to be alarming. We were admitted right away which is also nice. I am going to find out his igg level soon. Hopefully, he won't require ivig at this time.

Jenni

Rash is gone

I just noticed I have not given an update on Carver's rash.  It is gone!  This is great because that can be a sign of Graft vs. Host disease of which he has now signs of.  They are all doing well and be are working hard to make sure they don't get sun burns.  God Bless,

Daniel

Humming along

Well, we have been just humming along this summer.  Spent some time with family in Iowa and Kansas last week after a few days of checkups at Children's mercy.  We got good reports on the boys.  They had no big worries with Carver and we learned a little more about Granton.  First, his eye is getting better, patch only four hours a day now, but we were never really concerned about that.  We have been more focused on his B cells that are not doing there job.  We spoke with a new doctor and he explained it like this:  If the common cold came around and Granton and Kaylynn both got it, they would both get over it.  However, The B cells kind of work like memory cells so if the same strand of cold came around two weeks later Kaylynn would not be affected by it (her B cells work fine) and Granton would get it all over again.  The good news is Granton's IVIG infusions make his immune system normal.  Right now, we are planning on sticking to the IVIG treatments and we hope there will be some new technology down the road that will make his B cells work on there own.  We will just keep praying and trusting in the Lord for both boys.  Actually, Carver just had a rash pop up and we are praying and trusting in the Lord about that right now because we are always aware of graft vs. host disease.  We will keep everyone posted.  Thank you for continuing to pray for the boys.