Wednesday, July 11, 2012

Humming along

Well, we have been just humming along this summer.  Spent some time with family in Iowa and Kansas last week after a few days of checkups at Children's mercy.  We got good reports on the boys.  They had no big worries with Carver and we learned a little more about Granton.  First, his eye is getting better, patch only four hours a day now, but we were never really concerned about that.  We have been more focused on his B cells that are not doing there job.  We spoke with a new doctor and he explained it like this:  If the common cold came around and Granton and Kaylynn both got it, they would both get over it.  However, The B cells kind of work like memory cells so if the same strand of cold came around two weeks later Kaylynn would not be affected by it (her B cells work fine) and Granton would get it all over again.  The good news is Granton's IVIG infusions make his immune system normal.  Right now, we are planning on sticking to the IVIG treatments and we hope there will be some new technology down the road that will make his B cells work on there own.  We will just keep praying and trusting in the Lord for both boys.  Actually, Carver just had a rash pop up and we are praying and trusting in the Lord about that right now because we are always aware of graft vs. host disease.  We will keep everyone posted.  Thank you for continuing to pray for the boys. 

4 comments:

Direnna said...

I always rejoice in the good news! I love those babies and would love to spend some time with them! Thanks for taking the time to post updates and keeping us in the loop on how or what to pray for. God is so faithful!
Love you both so much!!!!

Anonymous said...

It was soooooo gooooooood to be with ALL last week. to meet our baby Carver that isnt a baby. Ill tell the world he is a good eater and sweet guy. We did have a blessed week. Love you all. Pa & Gma

Anonymous said...

THANKS for the update, much appreciated. I continue to shout "Thank you, God" regarding your family! And I request His continued blessings on you. Marie in Iowa

Cathy O said...

Thanks for letting us know how things are going. So glad to see that all is going well. Hope you have a great summer just enjoying each other. Will continue to keep your family in my prayers.