Thursday, August 20, 2009






















It has been too long since we had some pictures on here. The one on the tractor was taken this week. The one with the ropes was when he was "working out" with me at the farm. The rest of Granton were at Aunt Shanna and Uncle Neal's wedding. As you can see he loved hammering the ivories and then taking his shirt off and dancing with the older women. We had to put one of Sister Buttercup in there also. Thanks for the prayers.

Thursday, August 13, 2009

New report

Well, once again I am short on time, but I need to tell you about the B-cells. They were not able to test for them and Granton’s number was low enough that he needed IVIG. However, the doctor told me that Granton is still well within the normal parameters of recovery. I had been under the impression that they were more concerned about the B cell count. She told me that the B cells are tied to the T cells. Granton’s T cell count is great and it is 97% donor cells. She did not seemed concerned about the B cells catching up. T and B cells are main parts of an immune system. Right now Granton does have an immune system but it is compromised. She said it is like fight with only one arm. It can be done but not as well as if you had two. However as I understand it T cells are a little more important. So since Granton’s immune system has them he at least gets to fight sickness with his dominate hand. As always, Granton does not care. He is very happy and has started enjoying making his sister laugh. I will try to post pictures later. Thank you for your continued prayers.

Saturday, August 1, 2009

Making up for lost time

Man, it has been way too long since I wrote a blog. We don’t have internet at home so we typically use three computers. One is at my classroom at school and the school has been closed where I can’t use my room. The second is at Jenni’s parents and it broke. The third is in Kansas on the farm and it has been off line due to remodeling. That is one reason I haven’t posted for so long. The second is much better; we have been having too much fun. As you know, we spent ALL of last summer in the hospital room with Granton, but now we are making up for lost time. It has been great. I normally work construction jobs for our school in the summer, however; this year the school could not afford to do any projects so I have not had any extra work. At first this was really bothering me because I like to work and of course we like the extra money. Now I look at it differently. We did not get summer last year so this year we are going to get to pack two summers into one. It has been great. We have spent as much time on the farm as we can. I think this is Granton’s favorite place in the world. He loves his Me Me and Pa Pa and his best friend, Cousin Addison is there also. He also likes all the animals. Since our last post, we have also spent time in Oklahoma, and Branson. I have also spent time at a few different churches charring our testimony with the SCID’s adventure. I typically talk for thirty-five minutes and I still have not been able to finish without crying. At least I am not alone because I see a lot of people wiping there eyes before I am done too. Today is also a big day for Granton because he gets to be the ring barrer in Aunt Shanna and soon to be Uncle Neil’s wedding. He practiced last night and did fine. However, he decided this is exciting an event to walk with his pillow and rings. He thinks it is much more appropriate to spring and then he would like everyone to clap and yell “yea” when he gives the rings to the right person. It should be fun to see what happens today. All right, I guess I will change the subject to Granton’s B cells. We still have no news. The Doctors are staying positive and hoping that the cells are just taking a long time to come back. They will be much more concerned after six months. Next week is month five and Granton will have a check up on Thursday. I don’t think anything could make me more happy then his number being high enough that they will be able to test t he B cell. This is something we have been praying and I know many of you have been praying as well. I am still reminding my self the words of the lady who grabbed my heart in the waiting room of the PICU over a year ago. “Don’t worry, pray.” So that is what we do and that is how we try to live our life. I know the Lord has everything under control and I very interested to see how God takes care of Granton. So just keep praying and keep checking the blog for updates. School will start soon so I plan of posting more. Thanks for being so patient and keeping us in your prayers.

Monday, July 6, 2009







Hanging our

I know I have not posted anything in a while but we have been away on the farm and at the lake. We had a great time. On the 4th last year we were taking Granton off the ventilator. I think that post is recent enough that people can actually go back and reminisce. As most of you have noticed all the old post when things were bad are not on the blog anymore but this one is new enough. This year was much more calm. Taking him off the vent is one of my best memories but this was probably more enjoyable this year with out all the "excitement." Anyway the little man goes in for a check-up on Wednesday. They might finally test those B cells so pray for to have a bunch of the right ones. Thank you so much and enjoy the pictures and video.

Friday, June 19, 2009

Fun at the Pool











Well, as you all know we did not have a summer last year because we lived in the PICU. In fact, Granton had never been in water deeper than 5 inches until today. He did pretty well and we are all trying to make up for lost time. It was a lot of fun.

Thursday, June 18, 2009

B-cells?

Some people have been asking me about Granton's B cells. Trust me, I want to know also. I thought we were going to have some test done at his last check-up. However, one of his numbers was a little low. I forgot what this one is called but when it drops under 400 he needs IVIG. It was at 453 I think. It will be awhile before Granton goes back to the hospital so they gave him IVIG to be on the safe side and they are planning on doing the tests next month. We will keep you posted and keep praying for the right B-cells to come back.