We have been able to space our appointments out to once a week which is a step toward home. We hope to keep this trend up. Also, we are praying about whether or not to place a port inside Carver's chest for easy blood access. The Hickman line he has now is more of an infection risk because it hangs outside his body. Plus, he likes to tug on the lines a lot and the thought of him pulling it out horrifies me. I handled the bloody surgery just about as well as our last dog Capone in a thunderstorm! Needless to say, Carver will have labs drawn at least once a month if not every other week for awhile. So, it would be nice if he wasn't the walking pin cushion his big brother is (I'm so proud of Granton). We just don't want the port in his body longer than necessary.
Counting down the days is at a standstill right now. Sometimes its just easier that way. But, I got more answers from our last appointment that gives me hope we are headed in the right direction. His last ivig will be March 29. His Hickman line will come out around that time because we are stopping the fungal medication infusion. And, we will be weaning the immune suppressant which is all but weaned now...a whopping .05ml.
Encouragement and prayers are still welcome! Love you all.
Jenni
5 comments:
Jenni this is sounding so good. We are so anxious to see Carver AND everrryone. About the dress go for it and hope you get to wear it often. Debbiefound a consignment shop here in Yukon that is goingout. Got Jeffrey and Micheals little girl some cute dresses for a GOOD price. Thought about the other little girls. Jenni and Daniel stay HAPPY hang in there time is getting close. We keep praying. Pa & Gma
Prayers of encouragement and continued healing are offered to you all. Thanks for your updates, Jenni. I thank God for your strong faith and good example to us all. Marie in Iowa
Thinking and still praying for u all- Ronda
Thanks so much for your updates, guys. It really helps a lot when we are out here on the road. Glad to hear everything is going as good as can be expected. We should return home around the first of April as well.
Love, Grandma Jeannette
LOVE this picture. Gma Vena
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