Hanging our

I know I have not posted anything in a while but we have been away on the farm and at the lake. We had a great time. On the 4th last year we were taking Granton off the ventilator. I think that post is recent enough that people can actually go back and reminisce. As most of you have noticed all the old post when things were bad are not on the blog anymore but this one is new enough. This year was much more calm. Taking him off the vent is one of my best memories but this was probably more enjoyable this year with out all the "excitement." Anyway the little man goes in for a check-up on Wednesday. They might finally test those B cells so pray for to have a bunch of the right ones. Thank you so much and enjoy the pictures and video.

Fun at the Pool

Well, as you all know we did not have a summer last year because we lived in the PICU. In fact, Granton had never been in water deeper than 5 inches until today. He did pretty well and we are all trying to make up for lost time. It was a lot of fun.

B-cells?

Some people have been asking me about Granton's B cells. Trust me, I want to know also. I thought we were going to have some test done at his last check-up. However, one of his numbers was a little low. I forgot what this one is called but when it drops under 400 he needs IVIG. It was at 453 I think. It will be awhile before Granton goes back to the hospital so they gave him IVIG to be on the safe side and they are planning on doing the tests next month. We will keep you posted and keep praying for the right B-cells to come back.

Happy Birthday Granton! Kinda :-)

One year ago today we took a big leap of faith. We went for the last chance one in a million Hail Mary touchdown pass. It wasn’t expected to work and even if it did we were prepared to have a little frail boy on a ventilator for the rest of his life. However, after much crying out to God in prayer we felt, as bad as it was, it was Granton’s best chance. Actually, this was the first time since March when our boy was admitted into the hospital that I felt a peace. I knew it was what God was telling us to do so we did it. Granton was the first ever child to receive a transplant of this kind in the PICU at Children’s Mercy. The transplant team and the PICU team even had to have meetings just to figure out how to work together because they never had before. They had never attempted anything like this on a kid as frail as Granton. We knew his lungs were already wasted and we were told the treatment involved in the transplant would make them even worse. It would most likely kill him. But again, we also knew eventually we had to try something. We had a peace from above about this decision. I will never forget all the doctors and nurses bowing their heads as Jenni and I prayed for the new blood as we watched it enter his body. We asked that it would be his life blood. Jenni noted that Granton was admitted into the hospital on Easter, the day celebrating how Jesus paid for our sins and saved us with his blood. Now we were praying for our little boy’s life to be spared through this new “life blood.” That was a year ago today and we have a happy little man who is not enslaved by a ventilator. He doesn’t even require extra oxygen; instead our son breaths just like a normal boy. He runs all over our house and smiles all the time. He is constantly getting into trouble, turning everything upside down like a little tornado. He is a whirlwind of blessings and we love him so much. We are so thankful for all the blessings our Lord and Savior has poured out on us pressed down shaken together and running over. We are so thankful for the doctors and nurses who God used as tools to save our little boy. We are so thankful for the countless people who constantly prayed for Granton and still pray all the time for our little boy and our family. Thank You. You are all a part of Granton’s “Birthday” calibration.

Well, I finnaly got around to posting some pictures without technical difficulties. I know that most of the people who read this blog only know about Granton, but I did not want his sister to feel left out so we are showing her off too. Granton has an appointment on Thursday. Please pray for good news from that. Also, thanks for the prayers and advice about the puking. We have cut out about the rich food and milk products. Actually, we did cheat once and give him a little ice cream with his strawberries as you can see in the picture on the right. Anyway, we have not had any throwing up episodes lately and we are praying it stays that way. I don't have much else to report. Take care and God bless

Happy Man

Well we had to go back to the drawing board with Granton's throwing up problem. We don't know what is going on. But he had another puking session the other night. The good news is he felt great yesterday. We made sure he ate healthy food and he ate like a horse. The guy has been in a real good mood lately. He helped me clean out my truck and work on our drive way. He likes to "work" with his dad and I love that. Please keep praying for the little guy. Thanks.