He passed a test.

Granton went to the endocrine clinic before Thanksgiving and they tested his adrenal system. His adrenal glands are now working well enough on their own. They produce enough cortizone. He will not have to receive hydrocortizone when he spikes a fever or gets sick. We are happy with his continued progress. This winter he will be getting a sub-q shot once a week (immune globulins) to boost his immune system. I discovered I can give him his shot during nap time and he won't wake up. This is a huge praise for me!

Merry Christmas to Everyone!!!

Jenni

Doing Well

I just want to send out a good update.  Granton's eyes are doing great.  It was hard for a while as he spent a few days with his eyes closed.  But he came home from the Dr. on Thursday like a new little man.  I was already home.  He came running through the door with a big smile.  He yelled, "Daddy, I fixed my eyes!"  I don't think he was responsible but I will let him take the credit.  He is doing very well now and his eyes are straight and not blood shot.  Everyone is doing well.  We always report when we are having hard times.  I just wanted to send out a praise when everything is fine.  Thanks for keeping us in your continual prayers.

Post Surgery Report

We have not been very good at keeping up this blog.  For those of you who don't know, Granton had surgery on his eyes yesterday.  The doctors cut some muscles to correct crossed eyes.  As far as we know everything is going as planned.  The poor little guy is very sore and until a few hours ago was not able to open his eyes.  He cried most of the day yesterday (which is not easy on the eyes anyway) and last night he asked Jenni "Mommy where did my eyes go?"  Jenni has been assuring him he still has eyes and I know he will be very happy when he can start using them again.  On top of that his IVIG number dropped so we will have to give him an infusion.  He is very sensitive right now and will not like the needle so of course we would appreciate your prayers.  I know this is one of the things we will look back as just a bump in the road but some times those bumps can hit hard when they come up.  Don't want to sound negative, we know we are very blessed.  We just appreciate how much people continue to lift us up in prayer.  Thank you.

Homeward bound

Well, I just got off the phone with Jenni, and baring any new developments, they will be on their way home this afternoon.  Granton is going great and is all caught up on on his TV fix.  Jenni said he is full of energy.  He want to go to the park and he is about to tear the walls down in his hospital room.  It is so nice to see him turn around so quickly as we were used to spending so much time in the hospital.  Anyway, that is the update.  Keep praying for the little guy that he completely heals up and all his numbers do what they area supposed to do.  We look forward to the day he gets his clean bill of health.

G man in KC

OK,  We have had a few developments today.  The short story is that Granton was admitted into Children's Mercy of Kansas City.  Jenni is staying with him and I am at home with Kaylynn who is climbing all over me as I type.  Jenni sounded good on the phone and said Granton was eating a hamburger and enjoying TV.  His fever is down to 102 they are giving him antibiotics once a day.  His IVIG number is still low but a little higher than it has been.  They are going to give him IVIG tonight.  They sound like they are doing well.  The doctors said they would not have admitted a normal kid but they always play it safe with Granton.  That is one of the reasons we love that place.  We know God has put Granton in good hands.  Thanks for the prayers.  I got to go because Kaylynn needs all Daddy's attention right now.

Thanks for praying

Well we have not posted in a long time but we know some people still check the blog so I a putting a little prayer request on here. Granton’s # that is supposed to stay above 400 has been bouncing around and was under 400 last time we checked. He got his blood tested and the results should come in today. We are thankful he has not needed IVIG since Easter. So please pray this number goes up. Also, he woke up this morning with a fever of 104. A few weeks a go he his temp would bounce around but it never got close to that high. Jenni took him to the doctor and Granton’s x-ray showed a little pneumonia. It is not drastic but we all know what happened last time he got phenomena. I understand he does have an immune system not even if it is compromised, but we watched him breathe different yesterday as he was sleeping and that stuff gives me flashbacks to a place I don’t want to go. I am not trying to cause alarm. Actually, the only reason we could see a difference is because he was asleep. When he is awake he is full of energy and running all over the place. He has not looked like a sick kid. But, we have learned not to let his energy level and attitude to fool us also. Anyway, just lift the little man up in prayer. Jenni and I are still being reminded to trust in the Lord and that is what we are doing. Thanks for praying.