New Responsibility

Well, we have a new responsibility with Carver.  It looks like he has type 1 diabetes.  Jenni and I are dealing with this as best as we can.  We have learned how to count carbs like pros.  We have to be very careful because he is so little that he is VERY sensitive and his numbers swing around a lot.  He is happy and does not mind the constant poking.  This has been very hard for us to swallow.  Carver had been the one with the home run transplant.  Now it looks like the transplant or at least his donor was the cause for this condition.  I am still praying for Carver to be healed of this.  God has seen us through so much and I know he will carry us through this also.  On an up note his IGG numbers are doing very well and the little man stands on his own when he does not know we are watching and he is about to walk.  Thank you for continued prayers. 

Say a Prayer for Carver

Granton and Kaylynn are busy playing on 6 Henson in their favorite hospital. Carver, unfortunately, is waiting in a room for a couple days to determine whether or not he has diabetes. His glucose level was checked three times so far, and the doctors here are treating him as a diabetic patient and giving him insulin. The last glucose test was as high as 455 from 466. Actually, Granton came in for a routine check-up and a yearly endocrine appointment. He is growing very well at an average of 3 inches a year. He's fine. I am thanking the Lord that we checked Carver's labs today as we weren't expecting anything to be alarming. We were admitted right away which is also nice. I am going to find out his igg level soon. Hopefully, he won't require ivig at this time.

Jenni

Rash is gone

I just noticed I have not given an update on Carver's rash.  It is gone!  This is great because that can be a sign of Graft vs. Host disease of which he has now signs of.  They are all doing well and be are working hard to make sure they don't get sun burns.  God Bless,

Daniel

Humming along

Well, we have been just humming along this summer.  Spent some time with family in Iowa and Kansas last week after a few days of checkups at Children's mercy.  We got good reports on the boys.  They had no big worries with Carver and we learned a little more about Granton.  First, his eye is getting better, patch only four hours a day now, but we were never really concerned about that.  We have been more focused on his B cells that are not doing there job.  We spoke with a new doctor and he explained it like this:  If the common cold came around and Granton and Kaylynn both got it, they would both get over it.  However, The B cells kind of work like memory cells so if the same strand of cold came around two weeks later Kaylynn would not be affected by it (her B cells work fine) and Granton would get it all over again.  The good news is Granton's IVIG infusions make his immune system normal.  Right now, we are planning on sticking to the IVIG treatments and we hope there will be some new technology down the road that will make his B cells work on there own.  We will just keep praying and trusting in the Lord for both boys.  Actually, Carver just had a rash pop up and we are praying and trusting in the Lord about that right now because we are always aware of graft vs. host disease.  We will keep everyone posted.  Thank you for continuing to pray for the boys. 

My Bathing Beauty in Branson. A week of swimming and sun tanning was vacation indeed! The weather was a perfect treat for the springtime. 

We celebrated Granton's transplant day on Sunday June 10 at McDonald's. He and Kaylynn made a serious mess with their dip cones. It gets worse!

Carver is enjoying life at home. His labs look good and his immune globulin level has been in the normal range for his size. So, he hasn't had to receive any ivig immune booster. He is starting to eat solids now and moving everywhere. Officially rough and tumble, Carver decided to roll himself down a flight of stairs. We are thankful he did not end up in the ER like his big brother. And, Mom is still sane. What can I say God is truly merciful and kind.

HAPPY FATHER'S DAY!!!

Thankfully little to report.

It is really great to not have much to report.  Carver had his blood drawn here in Bolivar to see if he would need IVIG tomorrow in KC and he won't.  So Jenni will just take him up for a regular check-up.  Other than that, not much is happening.  Carver looks great.  He did catch a little cold but seems to be coming out of it.  We still have the same questions about decisions down the road for Granton but he is a very happy and very healthy boy.  All three of them are running circles around Jenni and I which is just fine.  We are a happy family.  We have to get some pictures on this blog to show these kids off.  Thanks for all the prayers.