Alarming Morning

Last night went like this. Granton destated from about 11:00pm to 2:00am reaching 85 at the lowest. Mom doesn't have near the patience that the grandmas do, so finally around 1:00am I had the nurse turn off his monitor in the room. I'd already tried taping the oxygen tube to his face and shirt and that didn't work for our little wiggle worm. The nurse tried to prop the tube up on a toy and that didn't work, so finally, I asked her for a nasal canula just overnight. We taped the nasal canula down twice, but since the tubing hung down in front instead of back, Granton decided he wanted to play with it. Eventually, mom took the dangling canula off his face and he didn't seem to have as many problems destating. However, he did have high blood pressure all night long and kept his nurse hopping in and out. About 3:30-4:30 mom got some sleep until Granton started getting sick. He was getting 135ml more last night to compensate for a feed that was skipped during the day. Anyway, he threw up four times and gagged several times along with dirty diapers, rumbling tummy, and moaning. Then, came the emergency. About 5:00am Granton spiked a sudden fever of 104 and his heart rate climbed to 230. An immediate team of heart doctors did an EKG to figure out why his heart rate was irregular. They determined it was caused by the fever, but they gave mom a big scare. We had to flip him upside down twice, hook him up to a heart monitor and the EKG machine. He got 3 antibiotics and cultures for a bacteria infection that they suspect has to do with his Hickman line again. Which means we should take it out ASAP. We were planning to do several surgeries all at once and get them over with while Granton was under anesthesia and on a vent. As you know things rarely go as planned around here. Now, we're looking at taking out the Hickman with a temporary PiCC line until the infection clears and Granton may receive a port and g-tube. The nurse told us to wait at least 48 hours to get rid of the infection. Right now, he is on blow by with a simple mask and we are waiting to place a nasal canula on so that it's Granton-proof. Currently, his temperature is 103 and his body seems to be cooling down. His heartrate is 193 and he is very underactive. I said lathargic, but the doctor quickly corrected me. Granton is usually so active, so for him he doesn't feel well at all. We just had a chest X-ray because both a transplant nurse and a respiratory nurse said he sounded a little crackly on the left bottom side. Wow! Did I ever get broken in to staying the night with Granton! But, I must say, he sure needed his mama when he started getting real sick. He wouldn't let go of me. At this point, I don't think we will be back in the picu because his blood pressure didn't drop after the antibiotics and his heartrate is going back down. He received zofran for his stomach ache, tylenol for the fever, and he is currently off his feeds and on iv fluids. I'm sure I've missed something, but I'll cover my tracks later. Until then, just keep praying for Granton and join us as we trust in God.

If you make the Most High your dewelling- even the the Lord, who is my refuge- then no harm will befall you, no disaster will come near your tent. Psalm 91:9-10

Jenni