Lots of news

First of all, I am sorry for the long delay on an update. I have some real good excuses for taking so long, but I hate excuses so I will just leave it as an apology. However, I do have quite a bit of news. First, I will cover the G-tube. We spent most of the day on the phone with doctors on the same day I made the post. Jenni also took Granton into the local hospital, also called CMH which makes things confusing, and had a nurse who works with G-tubes all the time look at him. To make a long story short, Dr. Jenni removed the G-tube that night. We have been dressing the opening and it is healing wonderfully. We have also been given an NG tube. This is the tube that goes through the nose. Most of Granton’s old pictures on the blog have a tube going in his nose. That was a NG tube. We don’t need the tube unless he gets sick suddenly and we have to use it to keep him hydrated. Now I will share the new news we have from his last checkup which was yesterday. Granton’s check up was very long. He and Jenni left at about 9:30 yesterday morning and did not get home until after 8:00 last night. They did all kinds of things done to him. He had an IV and some shots on top of his normal stuff and Jenni received some more training which took a long time. However, they won’t have to do that as much because he only has to go to KC every two weeks now which is an improvement. His blood pressure was kind of high, but he was not able to eat lunch until 4:00 and he had been stuck quite a few times by the time they took it. Jenni thinks the blood pressure was high because Granton was not a happy camper. Although, he did make the doctors happy when he got on the scales. They toped out at 8.9, which is 19.58lbs. Granton is now in the normal percentile for his age! We are still working on this because he has a new nutritionist and she wants to see him get to 10. Another good report is that Granton has shown enough improvement that they are going to start weaning hit steroids. This process should take about five months we hope. Almost everything from the checkup was good. The doctors did show concern about Granton’s rash. It is back, and as I have stated before, it is a sign of graft vs. host disease. We have a new cream for it and if it is not gone by the 29th we have to report to the doctors and I think they will run a bunch of tests on the little man. Please pray this is not G.V.H. disease and that the rash goes away. We are still “looking up” for answers and guidance. Thank you so much for continually praying for us. You have been so faithful and your support means so much to us. The Kansas City Star is actually going to do a story on our blog community because of your continual interest and support for the little guy. So we are all going to be in the news. I have been recognized a few times by people who saw me on the news, but I am recognized more by strangers who read our blog. The cool thing is people who read this blog feel more like family than strangers to me. I think that is what the newspaper’s story will be about. We will just have to read and find out. Speaking of the paper, I was told Granton has made the front page more than anyone besides the mayor this year. I will try to post sooner next time and thank you for your continual prayers.