Granton's Blog

Granton has had great results again today at his check up. His hgb level is 14.4! We are happy to see his energy level increase and his spunky personality come to life as his red blood cells carry more oxygen throughout his body. Yesterday was an emotional day for me as I remembered where Granton was a year ago. However, this year, we celebrated Daniel's birthday at our new home with fried chicken and playtime outdoors instead of waiting in the ER with scary X-rays, followed by a life-flight ride, and very little hope. Daniel, was especially thankful for a new year and a better birthday! A healthy, happy boy was Granton's birthday present to his dad...much better than last year.



Not a lot has changed. We are now able to take Granton outside more without a mask which we mentioned before. He enjoyed playing in the sand pit at track...we will post some cute pics later on. He is still considered immune suppressed for a few more months after he received the retuxamab and steroids to correct his hgb level and stabilize his immune system. We will allow Granton to see more friends his age this summer. Also, we're still praying for the donor B-cells to come back and not his own. If the donor cells come back he will be less compromised and will not have to receive ivig for the rest of his life. We have been planning ahead on his behalf just in case he might need another transplant. Arrangements were made to keep Kaylynn's cord blood for Granton. Again, we have hope that a second transplant will not be needed, but we are trying to be wise parents through all of this. That's about it. We will try to put some more videos and pictures up soon.



Jenni